dark blue background with white text: " Have You Heard of Farber Disease ? " above an illustration of a knee joint above teal text "Not Standing Still's Disease"

Have You Heard of Farber Disease?

Have you heard of Farber Disease? If not, you’re not alone. It’s often misdiagnosed as juvenile arthritis, though, so it’s definitely a condition to learn more about.

What is Farber Disease?

Farber disease is a very rare disease that has had less than 100 confirmed cases. Also called Acid Ceramidase Deficiency or Farber’s Lipogranulomatosis, Farber is a metabolic disorder. That means the body doesn’t break down or use lipids – AKA fats – the way it should.

Those lipids stack up around the body, especially around the joints. With swollen joints and hepatosplenomegaly, it’s no wonder this condition is mistaken for JA – especially SJIA.

Other symptoms may include:

  • Hoarse voice
  • Pain
  • Fever
  • Failure to thrive
  • Nodules or bumps under the skin
  • Central Nervous System issues
  • Respiratory issues
  • Inflammation
  • Swollen lymph nodes
  • Seizures
  • Vision issues
  • Diminished muscle tone
  • Developmental delay

Symptoms are generally, but not always, noticed in the first few weeks of life.

Misdiagnosis is a major issue

We already know misdiagnosis is a rampant issue within healthcare. In Farber Disease, doctors misdiagnose 70% of kids with JA. That means a longer road to an accurate diagnosis and proper treatment. To make it worse, there are several kinds of Farber Disease.

What can we do?

Thankfully, there is a genetic test for Farber Disease. If you’re interested in getting you or your child tested, click here.

You can learn more about Farber Disease on the Rare Diseases website.

This is a sponsored post. The information within the post was provided in part by Clara Health.

The Beginner’s Guide to Cannabis for Pain

background of photo is a dark background with various bokeh-style lights; a white outline is slightly inset from the corners; everything is middle-aligned; a green cannabis leaf with white text "The Beginner's Guide to" green text "CANNABIS FOR PAIN" white text "Not Standing Still's Disease"
A lot has changed for me in a year, and a lot of it comes from being more open to trying cannabis and CBD-related products for pain relief.

 

In December 2016, I tried high CBD edibles for the first time on a trip to Oregon. I had instant pain relief that lasted for a few days, despite traveling and dealing with flight delays. A year later, my pain levels have gone down immensely with the help of cannabis-related products like those containing CBD oil.

 

I heavily believe that without the pain relief CBD has brought into my life, I might not be here. I was in so much pain. Do I still hurt every single day? Absolutely, but not nearly to the same levels as before. I’ve even gone from being essentially couch-bound to hitting the gym 4-6 days a week.

 

Science?

The popularity of cannabis and CBD for health has grown immensely over the last few years with increased visibility, legalization, and research on these materials. There’s much more research now on the abilities of cannabis products to relieve pain, aid with immune system function, ease PTSD, and lower nausea. You can find more research here.
Organizations like the US Pain Foundation continue to share information about and advocate for medical marijuana – and the inclusion of chronic pain causing conditions. Ellen talks often about how societal stigma made her avoid cannabis for pain at first and how it’s changed her life. Even Sanjay Gupta has been a vocal supporter of medical marijuana for several years.

 

Choosing a Method

There are many ways to partake in the legal consumption of cannabis or CBD products. A variety of companies offer items like CBD gum, capsules, vape pens, lotionsgift boxes, and more. United Patients Group has a great resource around the pros and cons of different methods.

 

If you are utilizing any part of the cannabis plant – psychoactive or not – medicinally, it’s a great idea to track the effects. Different methods might affect you differently. For example, lotions help me immensely with my Still’s rash and joint pain while vaping tends to help my PTSD and anxiety more.

 

Your local dispensary can be an indispensable asset. When I was in Oregon, I was able to talk through options with the staff there and choose items that fit what I was looking for – something with high CBD for chronic pain.

 

Before you start this journey, make sure to check the status of cannabis in your state. Note that there are many ways to take action if you’d like to help the legalization process further in your area.

 

More Resources

If you’re looking for more information on CBD and cannabis-related resources, please check out this resource page.
 
Do you have questions about the use of cannabis or CBD for pain? Have a story to share? Leave a comment!
 
Disclaimer: This is a post sponsored by Nakturnal. All opinions in this piece remain my own and I was in no way influenced by this company or their sponsorship. All information displayed in this post is for educational purposes only and is not to be construed as medical advice or treatment for any specific person or condition. Cannabis has not been analyzed or approved by the FDA. Individual results may vary. Be aware of cannabis’ legality where you live before partaking.

 

Review: THYNC Relax Pro #THYNCrelax

a photo of the THYNC box (black rectangular box with a white slash in the middle) against a light blue sheet; photo has been darkened and colors other than B&W aren't distinguishable; black text at top middle "Not Standing Still's Disease" and at bottom middle "Review: THYNC Relax Pro"
 
I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company.
When I got the chance to try the THYNC Relax Pro, I nearly jumped for joy! I had been looking at it already and was very interested in giving it a try. It’s tricky to make things work when you’re not working more than freelancing, though.
Earlier this year, I learned about how the FDA doesn’t really regulate medical devices. It’s a scary thing to think about. The nice part about THYNC is that they’ve done studies themselves. In fact, this device has undergone testing over the last FIVE YEARS. Throughout that time, it’s been proven to be both safe and effective.
All the testing makes sense when you learn that neuroscientists from universities like MIT, Stanford, and Harvard created THYNC. Check out some of the positive press they’ve gotten:

How does THYNC work?

THYNC box opened against a light blue sheet; cover is black with a white slash in the middle; next level has a white manual and the golden kinda-triangular THYNC device; bottom level has a soft carrying case packets with the gel pads for use
THYNC comes with the kinda-triangular THYNC device itself, this nifty connector that clicks into the device, and gel pads that go between the connector and your skin. Once you put it all together, it looks like this:
two pics together; on the left, the front of the device with a black tab coming out from the bottom attached to a gel pad, and you can also see my 'believe' tattoo with the L replaced with a blue awareness ribbon; on the right, the back of the device showing the connector attached to the THYNC and both gel pads; in both pics, I'm holding the device and the background is a royal blue Doctor Who Tardis fleece blanket
You then open up the app, make sure the two connect via Bluetooth, and select your mode. There are two modes – deep relax and deep sleep.
Deep Relax
This mode should be used for at least 10 minutes at a time. It’s great to use once daily or whenever you’re feeling stressed. This is a very light vibration.
Deep Sleep
This mode should be used for at least 15 minutes at a time as you’re nearing bedtime. When you start to get sleepy, take it off. This vibration feels a little harder to me, though that could be because of my personal adjustment needs.
Regardless of mode, the app keeps track and will provide you with trivia on stress and sleeping habits.
What’s the verdict?
 
Remember as you read this that your mileage may vary. My body isn’t your body, and my experiences may not be yours.
 
The bad:
I have a bit of a prominent neck hump from my health crud and years of not having a real bed. Because of that, it wasn’t always easy to get the pads to stick well without asking for help. You should hold still when using the device, but also not be laying down, so that can be tricky as well. I have to stretch every few minutes or my neck and shoulders freeze up.
It isn’t always as easy to use as I’d like, especially knowing that it doesn’t always stay on my neck as easily as it might for others. When flying the other day, I wanted to pop this on. However, I was aware that, if I fell asleep using it or just moved the wrong way, I might lose the device. Again, this could be a just me kinda thing, but it’s something to keep in mind if you have a neck hump as well.
There are times when the vibration is a little too much if my fibromyalgia is acting up, simply because it is a vibration-based tool.
If you close out of the app, you can’t just go back into it to control the device again. You have to turn off the device and restart it. In fact, everything with the device’s power is manual, which can be tricky with a small on/off button. I hope that future versions will have the ability to start the device from the app so that it’s more accessible for those of us with hand dexterity issues.
Really, these are just things that need some tweaking – or things that would be helpful to know as you get started.
The meh:
I don’t know that the sleep mode really helped with my sleep at all. My sleep tends to be sporadic and I usually wake up in pain several times during the night. This didn’t change at all with using the THYNC, nor did I sleep longer in general after using it.
The good:
The relax mode is wonderful. I feel more relaxed and definitely more present. I suppose that’s made easier by the reminder that this is what I’m doing right now, trying to relax. It has an added benefit that the vibrations also help my neck pain somewhat (as long as I have the settings right) which definitely helps with relaxation.
I breathe more deeply and focus more intently on the things I want to do.
Overall, I’m really enjoying using the THYNC Relax Pro. I think next I’ll pair it with some of my favorite meditations from Buddhify and see what happens. We all know I need to relax more, so it can’t hurt!
Want to snag one of these for yourself?
Visit THYNC’s website! It’s currently $49 for a 30-day trial. Note that you have to use an app with this which is currently available on Android/Google and Apple devices.

 

Review: Liberty Lixir 1000 mg CBD Tincture

I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company.
Today I’ll be reviewing the Liberty Lixir Ultra 1000 mg tincture from Liberty Lotion.
This tincture is an isolate which means that it’s gone through a very rigorous process to remove anything other than CBD from the oil. Like with just about every CBD-only product, there is no THC in this.
According to the Liberty Lotion website, each pump from the bottle gives you close to 7 mg of CBD oil – 6.7 mg to be exact. They talk about how the most effective dosage is different for everyone but mention that around 3-5 pumps every 4-6 hours seem to be about the average.
What you do is pump the oil under your tongue and wait as long as you can for it to absorb. In addition to CBD oil, this contains Vitamin E and coconut oil. I don’t really like the taste of coconut oil, so I’m not always able to wait the recommended ~60 seconds. It also means I don’t necessarily love to swallow the remainder of the oil that doesn’t absorb.
I remedied this by following up the oil with a non-water beverage. The oil you swallow has to travel through your GI tract anyway and it likely won’t give too much benefit… so I’m not worried about following it with soda or anything else really.
Okay, with all that out of the way… how did this work?
Generally, when I’m dealing with a fibromyalgia flare-up like I have recently, I can’t even wear clothing. I sit in a fleece blanket on our soft couch and try to make it through the day. I’m lucky if I can shower maybe once a week, depending on how long this flare-up goes. Everything hurts from head hair to pubic hair to anything touching my skin. I’m unable to sleep so I’m up at all kinds of weird hours instead of sleeping in bed with my husband.
I really freaking hate not sleeping by T when we’re both home. It’s something that is so out of my control and something that my diseases dictate. I always worry about resentment or loneliness. For a while, I just couldn’t even try to sleep in our old bed. I would come in and read him a story or listen to a podcast and then head back to the couch once he was asleep.
After starting this tincture, though, I don’t want to go anywhere without it.
I have slept in my bed next to T every single night. I’m crying writing this because it’s been a long time since I made it through a week sleeping in our bed.
The fact that I’ve been able to sleep at all has contributed to this flare being less severe than those I usually experience.
On top of that, though, I’m being able to go do things. Maybe wearing clothes still isn’t the most comfortable, depending on the dose I’ve used, but I’m able to do it instead of breaking down in pain and crying. I’ve been able to keep lunch dates with friends and plan others because I have some semblance of a life back.
CBD, in general, is something that I love, but I have not ever tried something that impacted my life as much as Liberty Lixir.
I mean, I’m crying writing this right now. I have control over more of my life than I’ve had for years. It’s no surprise that this, then, is pretty much my favorite product I’ve ever tried – EVER.
Oh, and did I mention they also have a reward system? There are so many things you can do to earn rewards, too!
You can redeem 500 points for $10 off, 1000 for $25, and 2500 for $75.
I’ve already ordered a few of their topical products and am super excited to try them out soon! I’ll definitely report back.
Want to snag something from Liberty Lotion for yourself? If you use code ‘NSSD’ you can save 10% off your order at Liberty Lotion!
 

 

Review: Premier Biomedical CBD Patch

I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company.
Today I am reviewing a CBD pain patch from Premier Biomedical Pain Management Solutions.
In addition to CBD oil (which, for this product, is derived from hemp), the patch includes coconut oil, lecithin, aloe vera, almond oil, shea butter, and various extracts or essential oils.
The patch is latex-free which my skin appreciated! It is similar in look to a band-aid, with the actual CBD contained in a reservoir where the cottony part of the band-aid would be. The reservoir contains 48 mg of CBD oil that gets released over a longer period of time – up to 96 hours!
Via Premier Biomedical
The corners of the patch are rounded which I appreciated a lot. It made it a lot less likely to catch on my clothing or try to pull off in my sleep. It was also water resistant so I was able to shower with it on!
The first thing I noticed when opening up the pouch was the smell. It was pleasantly floral, but not too much so – probably from the eucalyptus, sage, and citrus oils. The next thing was how the CBD oil was reddish in color because of the red palm oil used.
I was really excited about trying this out. I use CBD oil a lot in lotions, so this was a good next step for me. I had a fibromyalgia flare-up and thought it would be a good time to try the patch out… That may not have been the best idea, simply because I generally don’t handle things on my skin well when I’m flaring.
That was my own fault.
Since my left shoulder and neck are my worst spots right now – and you should place the patch as close to the source of the pain as possible – I had T put this on a trigger point about halfway between the two.
My fibromyalgia pain was untouched. It hardly responds to much and, again, I should’ve picked a better time to try this patch.
That said, my neck and shoulder pain has been fairly constant over the last 13+ months. Wearing the patch over the span of a few days, though, has really helped clear it up. Even now, a few days later, the pain isn’t nearly as bad. It also isn’t as constant. It isn’t here when I wake up.
It’s so weird – good weird, obviously!
We’ve tried a lot for this pain – other patches, gels, heat, ice, massage, trigger point injections, acupuncture. Nothing has worked as well as this patch has. Acupuncture is the only thing that comes close, and that isn’t necessarily very comfortable.
The other thing is my acupuncture isn’t covered by insurance. That means we have to pay over $80 a visit for me to get that. This patch is only $20. Four patches with shipping and I’m saving a bit of money and getting better pain relief.
I definitely recommend this patch, especially because I’ve been able to be so much more active lately as a result.
Interested in snagging your own? Head over to Premier Biomedical!

 

NASH: The silent and often forgotten cause of liver problems

Nonalcoholic Steatohepatitis, or NASH, is a more severe form of Nonalcoholic Fatty Liver Disease (NAFLD). It results when fat builds up in the liver causing inflammation, and it’s a growing health problem that is already the second-leading cause of liver transplant in the U.S. By 2020, it’s expected to be first. Over 12% of Americans are affected by NASH making it the second most common cause of liver transplant.
While I don’t deal with NASH myself, my mother has it. As I’ve said before, we don’t talk, but I think it’s important that I’m educated about it and help raise awareness of it among others. I’m not going to ignore that there is a genetic link – those that carry a certain gene have a greater chance of getting NAFLD and NASH.
There isn’t really one specific cause for NASH, but if you have type 2 diabetes, prediabetes, obesity, high cholesterol or high blood pressure you may be at greater risk.
In some cases, NASH patients might have pain in the upper right side of their abdomen along with fatigue. Symptoms like an enlarged liver, insulin resistance, and cirrhosis may lead to further testing. However, NASH can go undetected for decades because symptoms are often minimal until the disease has advanced, so if you’re at risk it’s critical to have regular blood function tests during your annual physicals. Blood tests, ultrasounds, CT scans, MRIs, or biopsies are other common types of testing for liver disease.
To me, the scariest thing about NASH is that over time, it can cause serious complications like cirrhosis (severe liver scarring) and liver cancer.
With no FDA-approved medications yet available to treat NASH, options for managing the disease are limited to diet and lifestyle modifications. If you or a loved one has NASH, talk to your doctor about participating in a clinical trial – you can learn more at www.NASHStudy.com. But for now, maintaining a healthier lifestyle is the best way to help control NASH and reduce some of the top risk factors like obesity.
Look, losing weight and eating healthy aren’t easy. Trust me, I know. It doesn’t get any easier the less active we are, though.
In the past, I have tended to overdo things when I’m feeling well from my various invisible illnesses. A few weeks ago, I went from agonizing pain to relief overnight and decided I should go running.
This was not a good idea for me.
Still, that doesn’t mean that I’m not active. Since finally getting the release from my rheumatologist to be able to do yoga again, I’ve been keeping up with stretching every single day. I try to do a bit every few hours.
Right now, that’s all I can do – and that’s okay. I know I can build up to being more active, especially as the weather outside becomes less full of ice and snow.
As far as eating goes, I just had a visit with my rheumatologist. Since I’m not able to be maybe as active as I’d like, we discussed supplementing some of my activity with a bit of a better diet. We talked about the potential benefits of a Mediterranean diet for those of us with autoimmune/autoinflammatory diseases and decided to head in that direction.
It makes the most sense for me anyway. When I cook, whatever meal it is tends to have an Italian spin on it.
My rheumatologist’s nurse always comes in last and we went over her tips and tricks for eating well – high-quality olive oil to dip bread in or fry up lean meats, a handful of nuts like almonds every day or so, and getting those fish-supplied Omega-3s.
The trip to the grocery store afterward wasn’t necessarily the cheapest, but the subtle changes I’ve made so far have, at the very least, helped me feel a little healthier. The nice thing is that we are giving it time. I have until my next appointment with them in July to fully adopt this diet.
Thank goodness, because I don’t know how I’m going to give up tacos… maybe I’ll just make them Italian.
Disclosure: This post was sponsored by Intercept Pharmaceuticals, Inc. a biopharmaceutical company, and should not be construed to constitute medical advice. My personal story and opinions are my own. I am not a medical professional and am not qualified to give medical advice. Please talk with your doctor about your individual medical situation, including whether enrolling in a clinical trial, such as NASHStudy.com, could be the right option for you.  

 

Review: The Fay Farms’ Rejuvenation Lotion

I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company.
Everyone knows I’m not a sucker for natural products. Having had a lot of that pushed on me as a child in lieu of treatment proven to work has given me some trepidation on all that stuff. Still, there is so much to be said for items that help us cope.

 

For me, the CBD oil containing lotions from The Fay Farm are some of the most helpful things I’ve ever found. I’ve already reviewed a few of the products they sell – their Healing Hemp lotion and their Serenity lotion which both have CBD oil. When the opportunity came up to review their Rejuvenation lotion, I was ecstatic.

This lotion is made with organic ingredients such as Purified water, hemp oil, grape seed oil, apricot kernel oil, emulsifying wax, stearic acid, argan oil, magnesium, white sesame oil, jojoba oil, essential oils, 200 mg. CBD oil, fennel, licorice, turmeric, valerian, gluconolactone and sodium benzoate (certified organic preservative).

 

It smells fantastic. It seems to be appreciated around the house by guinea pig or human more than even the other Fay Farm lotions I have. The mixture of different oils and ingredients make this a unique smelling lotion that just cannot be recreated from any other store-bought stuff. It’s a gentle smell that I can handle even during the worst migraines. It also smells a heck of a lot better than any other thing I’ve ever put on a sunburn.

 

Oh yeah, the sunburn thing.

 

You might recall that, back at the beginning of February, I took a friendship trip to Mexico with my best friend from college. It was very lovely and full of me making decisions that didn’t necessarily keep my health in mind, like not doing enough sunscreen.

 

 

I got one of the worst sunburns I have ever had. When I got home, all I could do was sleep on the couch, wear a blanket, and lotion lotion lotion every five minutes.

 

When I pulled out my Rejuvenation lotion, I figured that this would sting my sunburn and that I would still have to apply the lotion really frequently.

 

I was so happy to be wrong! 

 

It wasn’t like using aloe vera gel where I stick to everything for days and it definitely wasn’t like greasy lotions that make me slip on the bathroom floor.

 

Rejuvenation is soft and gentle on even the most painful – and scarred – sunburned skin. It also absorbs really quickly into the skin and does an amazing job actually bringing moisture to the area.

 

This lotion saved my skin.

 

 

I’m really tan for me, especially in March in Wisconsin. I don’t have any scarring or scabbing leftover from my sunburn which, six weeks later, is usually somewhat common for me given the severity of this burn.

 

The only reason that my skin healed up as quickly and as nicely as it has is this lotion. Instead of scars, I have these gorgeous freckles like I used to have all over when I was younger.

 

Rejuvenation is definitely a part of my warm weather survival kit. Want to add it to yours? You can snag this in 2 oz or 8 oz.

 

You can visit Project CBD’s Beginner’s Guide to learn more about CBD.

 

 

Review: TechCare Pro TENS Unit

I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company.

Today, I am reviewing the TechCare Pro TENS Unit.

 

For those unfamiliar with the term, TENS stands for transcutaneous electrical nerve stimulation. This kind of stimulation can help to relieve muscle tension and pain by essentially exercising muscles using electricity. TENS units help provide that stimulation via electrodes the user places on their body. The user then controls the intensity and type of stimulation via the unit itself.

 

Having used some TENS units in the past, I really appreciated that the TechCare Pro was really light. Others I’ve had have been heavy and a little difficult to manage. It was easy to plug in the electrodes and easy to utilize those.

 

 

It comes with two differently sized kinds of electrodes – a set of tiny ones and a set of larger ones. The larger ones are about the same size that one might find in a drugstore or elsewhere. The tiny ones are smaller than I’ve seen elsewhere and that was actually pretty nice to have. I was able to use those in spots that were more difficult to get the others onto like around my collarbones.

 

One thing I found odd with this unit is that there is no start/stop/pause button. Once you turn on the device, it’s on and going. If you want to switch modes, you have to turn it off and then get back to the mode and intensity you want to utilize. That would be amazing to have on this unit as it would allow for repositioning of electrodes – or even a quick bathroom break – without turning the unit off.

 

 

The button in the middle that one might assume is a pause button actually changes the modes. See, there are these kind of ‘parent-modes’ – those you see in the photo above – and each parent-mode has 2-4 modes within it. I do wish these modes were slightly more straightforward. However, it’s easy enough to switch between these modes that it really doesn’t bother me.

 

All in all, this isn’t necessarily the most intuitive device – but does it work?

 

Yes, yes it does.

 

This is one of the most comfortable and effective TENS units I’ve ever used.

 

The low-intensity levels are effective on light pain. I haven’t had to go past mid-level intensity on any of these modes in order to get relief.

 

The fact that it’s so lightweight means that it’s perfect for me. Between traveling a lot and having major fatigue issues lately, heavier units of any kind are getting more and more difficult to utilize. Heck, my television remote isn’t the easiest for me to hold lately. This is lighter than that, even.

 

The price honestly can’t be beat, either. Similar devices can be several hundred dollars, but this one costs far less.

 
You can snag your own TechCare Pro Silver TENS Unit over on Amazon.

 

Oska Pulse: My New Best Friend

I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by Oska Wellness.

 

 

The Oska Pulse is one of the coolest devices I have had the pleasure of testing, and that’s not just because of its story.

 

Oska is actually named after a koala!

 

picture of a koala, close up of the face - he appears to be smiling as he is hanging onto a branch

 

Oscar had been injured in a brush fire in Queensland, Australia. His wounds weren’t healing and he was in a lot of pain. They weren’t sure that the little guy was going to make it.

 

As a last resort, the treating vet used a device a friend had that utilized electromagnetic fields to help with healing. They placed the device next to Oscar. He began to sleep through the night without whimpering in pain – and his skin finally started responding to antibiotics and began to dry and heal.

 

Eventually, Oscar was able to go back into the wild.

 

Shirley Hawker, one of the founders of Oska, was so touched that she wanted to name the Pulse after this little guy. To make it sound more Australian, though, they named is Oska.

 

Now that we’ve had our daily dose of cute…

 

What is the Oksa Pulse?

 

The Oska Pulse is a portable pain-relieving device that uses pulsed electromagnetic fields (PEMF) to do its job. There are four frequencies used concurrently during operation. Each one of these helps with a different task – easing muscle pain, aiding in bone repair, dilation the capillaries, and reducing pain. All of these tasks also help with recovering from injuries, too, making the Pulse a great way to tackle both short- and long-term health issues.

 

One of the things I love about Oska Wellness as a company is that they have a ton of journal articles and research on their site for your perusal. These talk about the benefits of PEMF technologies for joint pain, recovery time, muscle pain, and more.

 

This runs for half an hour at a time. Unlike products that have to directly touch your skin via electrodes, though, you can just turn this right back on and don’t need to let your skin rest.

 

 

It comes with a strap that the device can slide in, a charger, and a very comprehensive guide.
 

 

Okay, that’s fascinating and all, but does it actually work?

 

YES.

 

A few months ago, I started getting trigger point injections. After the first set, I was in a crapload of pain once the lidocaine wore off. I had to take some of my very few opiates left over from my bursitis adventure last January.

 

It was awful.

 

A couple of sets in, I received my Oska Pulse. I figured that a great way to test this out was to see if it helped post-injections.

 

And it did.

 

Is it like a TENS?

 

Not at all!

 

You don’t get zaps or zings with the Oska Pulse. It’s also pretty quiet, though you may hear a light buzz.

 

This isn’t really a device for breakthrough pain like a TENS is. The Oska Pulse aims to prevent pain from happening in the first place. With that said, I had to start using this a few days before my injections so that I knew that it would be effective.

 

 

I’ve been using my Oska Pulse nearly daily since then. It has greatly reduced the amount of pain that I experience in my upper back, shoulder, and neck – my worst body parts. I have used it on bruises which have healed more quickly than usual – which is good since, between my anemia and clumsiness, I’m great at getting random bruises.

 

Is it worth it?

 

At about $400, the Oska Pulse is pricey. This is competitively priced when compared with some of the other PEMF devices, which can cost upwards of $6,000! It’s also a lot more mobile than the other guys, which can wind up looking like a giant car battery.

 

No, thank you!

 

My Oska Pulse is perfect for me – lightweight, easy to handle, and incredibly powerful. Add in that it comes with the strap, making it easy to use wherever on the body?

 

 

I’m head over heels for it.
 

 

If you’re interested in snagging the Oska Pulse, click here and use the coupon code ‘NSSD’ to receive a $55 discount! 

 

Make sure to visit Oska Wellness on Facebook, Twitter, and Instagram in addition to their website.

 

Update: Oska has conducted a clinical study and found that Oska Pulse reduces pain and increases mobility! Click here to read more.

 

 

Quell: is it all it’s cracked up to be?

I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by Neurometrix/Quell.

 

 

I’ve been playing with my Quell since I got back from my California trip at the end of September. Even though that’s a long time, I still haven’t gotten to play with this to the extent I would like to so far, like with my back spasms.
What is Quell?
Quell works by electrically stimulating sensory nerves to carry neural pulses to the brain, which help to block pain signals within the body. Each pain-relief session lasts for an hour and the device can automatically turn on again after another hour if you’re still wearing it. There are two different kinds of electrodes – normal and sport. The sport is ideal when using in warmer weather or in situations where sweating is happening as it absorbs a lot less of the moisture from our bodies or environments.
The Quell is, according to their site, approximately 5x stronger than other over-the-counter tens-unit devices, too, meaning that the pulse hitting your leg can get pretty dang strong. One of the things that is difficult to get used to is that the intensity of the device within the first two minutes grows.
 
Fear not, though! There’s an app for that!
This app totally puts total control of the device in the palm of your hands, helping you to control and adjust the intensity of the Quell, track usage, and remind you to take the device off when your skin needs a break. It can also help track your sleep if you wear the device to bed.
As for helping with widespread pain, I’m not entirely sure about that one. I have certainly experienced a lot of relief in some symptoms, but these are mostly from my feet up to maybemy hips. I haven’t had the thought to put this on during the worst of my lower back pain as this happens during spasms and I can’t really move, let alone snag this from potentially another room and put it on. I’m definitely going to aim to try to test this out, though, the next time T and I are together at home and my back freezes up.

 

The bulk of my pain is very localized right now in the upper back/neck/shoulder regions. The Quell doesn’t really help me with that but does help my lower body pain. The amazing relief that I receive specifically in the knee I place the electrode under? It’s magic. I’m limping a lot less and able to handle stairs with more ease within the past few months, meaning this has helped my inflammatory diseases as well as my patellofemoral arthralgia.
It fits under most clothing pretty well, though jeans in the women category tend to be tighter in the calf. You can usually see that I have something interesting on my leg
This has turned flying into much less of a pain for me because I get relief from my hustle through the airport in addition to relief on the plane. The app comes in extremely handy here, too, as I can easily pump up the intensity when I have had to hustle in order to relieve the pain in my calves and/or knees.
It’s worth it just for how much flying I’ve done lately. Still, it helps make trips to the grocery store and other mundane, everyday things more bearable, too. I’ve been able to be a lot more active recently, even on days my lower body initially feels awful.
I can’t say that it will help with all-over body pain for all of us, especially when it hasn’t necessarily done so for me. However, if you have knee problems and can afford this product, it could definitely help.
 
Want to learn more? Visit the Quell official site. They are running some sales through November 28th with free shipping over $75 in the lower 48 US states. You could also find these on location in Walgreens, CVS, and Target stores or online with Amazon, Bed Bath and Beyond, and more.