On The Passing of John McCain

black background with yellow textbox and black text: On The Passing of John McCain Not Standing Still's Disease

Senator and former POW John McCain died yesterday.

Scroling through social media, I’m dismayed. I keep seeing statements from people who have forgotten McCain was not a man of the people. And, me being me, I’m upset by that. McCain was not a good person, at least politically, and we need to remember that. He did a lot of harm to communities – that’s his legacy.

I don’t have to be sad that a person who spent his life harming communities I’m a part of or I support died. This man is not some amazing person to put up on a high pedestal… unless you want to praise the systematic oppression of anyone who isn’t white, cishet, rich, conservative, American-born, and the right kind of Christian.

It’s okay to speak that truth. In fact, I would say we have a duty to do so because the GOP sure as hell isn’t going to take a break from attacking marginalized communities. They’re still scheming while tweeting out their sympathies.

McCain was horribly racist. He used racial slurs and continued doing so, though less publicly. He played a major part in selling sacred indigenous land to mining companies and golf courses. He also voted against MLK day, later saying he wished he hadn’t. Of course, McCain also elevated Sarah Palin which essentially co-founded the birther and tea party movements. That led to the administration we see today, especially with prominent birther Trump in charge.

Don’t forget that this man thought the ACA repeal effort – the one disabled people put lives on the line to stop last year – didn’t go far enough. He fought like hell to stop the ACA from being put in place. Instead of working to fix it, he campaigned on repealing it after it became law. It floors me that someone who helped with the ADA and tried to pass a patient bill of rights could also be so cruel.

On a more personal note, I didn’t have insurance coverage as a child because my mother sucks. Because SJIA is a pre-existing condition, I couldn’t get insurance on my own covering my SJIA until the ACA passed. It took a few years for me to get a job with an insurance option. I can’t imagine having had to wait until then to get care.

I could have easily died if McCain got his way, either by defeating the ACA initially or repealing it. MANY people would have. I don’t have to applaud him for making it through unspeakable things when he would’ve forced many of us into not dissimilar situations.

He could have saved disabled people. We could have stayed on home instead of being arrested. We could’ve taken care of ourselves instead of spending energy on basic human rights. All he had to do was say he would vote against it. Instead he wanted to pull a publicity stunt at the last second, telling reporters to ‘wait for the show.’

While I cried in bed, wondering what the fuck me and my disabled siblings were going to do without the ACA, McCain sat grinning on the inside like a son of a bitch. He did not care that his cavalier attitude was harming people. We were confronted with losing lifelines and he treated it like a game.

I stopped seeking diagnoses for things going on. I was afraid that whatever is going on neurologically or with my heart would get diagnosed. Without protections from the ACA, I could easily lose the ability to get any current diagnoses treated. McCain literally played a part in my poor health last year.

I won’t do about McCain’s legacy. I also won’t pretend that being a POW means he was a good person. What he chose to do when he got home and involved in politics is important. He chose to harm. He was a good republican.

I won’t speak well of someone who took pride in being a selfish asshole. If you choose to do that, you should re-examine why whitewashing history is a hobby of yours.

CHIP Needs Our Help

photo of a stethoscope with a heart on it against a white background; black text "CHIP Needs Our Help" and "Not Standing Still's Disease" at middle-top and middle-bottom respectively
The Children’s Health Insurance Program (CHIP) was passed in August 1997, taking effect the next month. What this program does is give states funds (that they must match) that help to cover children living in low-income households that don’t qualify for Medicaid. It’s undergone expansion, adding protection for a couple million more children thanks to President Obama.
Today, CHIP covers approximately 9 million children from low-income families. These children are at risk of losing their healthcare. See, funding for CHIP ends at the end of this month – so, Saturday. The Senate has refused to discuss renewing funding for CHIP since early this year, focusing on repeal-and-replace efforts instead. Without immediate renewal, over a million of these children would lose insurance and the remaining 8 million would see reduced benefits.
The Senate Finance Committee, led by Ron Wyden and Orrin Hatch, have introduced a bill – S 1827 – that extends funding for another five years. However, the Senate has failed to act on this.
Do what you can today to reach out to your Senators and ask them to discuss this bill NOW.
  • Contact your Senators
  • Protest and picket (if able)
  • Get loud on social media
    • Use tags like #saveCHIP
  • Send letters to the editors or reach out to your local news to explain your concerns

 

Let’s come together to ensure that these children aren’t left behind.

 

SOS: Take Immediate Action on HR 620

red background with white circle and red line around circle; red text "SOS: Take Immediate Action on HR 620" and "not standing still's disease" with a wheelchair logo at top
I know there’s a lot going on in our world right now. Please take a moment to help us disabled Americans, though.
HR 620 is being discussed today. This bill severely limits the civil rights of disabled peeps highlighting violations of the Americans with Disabilities Act (ADA).
The following is what I faxed to my House rep using Resistbot. You can do this too by texting RESIST to 504-09:

Please oppose HR 620.

As a disabled person, my rights depend on the Americans with Disabilities Act (ADA) of 1990. HR 620 would severely weaken the ADA, which already is under-enforced.

In addition to limiting our civil rights, it is a classist bill in nature. Requiring specific ADA sections to be referenced requires people to have an intimate knowledge of the ADA, which is not always possible. Regardless, why do disabled people have to continually prove barriers we face?

Please protect my rights, the rights of over a million disabled Wisconsinites, and approximately 57 million disabled Americans.

You can find your House reps here if you don’t already know who they are.

This is especially important to do if your representative(s) are one of the following current co-sponsors:

  • Alabama
    • Terri A. Sewell
    • Martha Roby
  • Arizona
    • Kyrsten Sinema
  • California
    • Scott Peters
    • Ken Calvert
    • Ami Bera
    • Jackie Speier
    • Peter Aguilar
    • Luis J. Correa
    • Jeff Denham
    • Darrell E. Issa
    • Jim Costa
  • Colorado
    • Mike Coffman
  • Georgia
    • Doug Collins
  • Illinois
    • Bill Foster
    • Bobby L. Rush
  • Louisiana
    • Ralph Lee Abraham
  • Michigan
    • Paul Mitchell
  • Minnesota
    • Tom Emmer
  • Oklahoma
    • Steve Russell
  • Texas
    • Michael K. Conaway
    • Henry Cuellar
    • Lamar Smith

You can also take a moment to contact members of the House Judiciary Committee as listed below:

  • Chairman Bob Goodlatte (VA-06)
  • Rep. Jim Sensenbrenner, Jr. (WI-05)
  • Rep. Lamar Smith (TX-21)
  • Rep. Steve Chabot (OH-01)
  • Rep. Darrell Issa (CA-49)
  • Rep. Steve King (IA-04)
  • Rep. Trent Franks (AZ-08)
  • Rep. Louie Gohmert (TX-01)
  • Rep. Jim Jordan (OH-04)
  • Rep. Ted Poe (TX-02)
  • Rep. Tom Marino (PA-10)
  • Rep. Trey Gowdy (SC-04)
  • Rep. Raúl Labrador (ID-01)
  • Rep. Blake Farenthold (TX-27)
  • Rep. Doug Collins (GA-09)
  • Rep. Ron DeSantis (FL-06)
  • Rep. Ken Buck (CO-04)
  • Rep. John Ratcliffe (TX-04)
  • Rep. Martha Roby (AL-02)
  • Rep. Matt Gaetz (FL-01)
  • Rep. Mike Johnson (LA-04)
  • Rep. Andy Biggs (AZ-05)
  • Rep. John Rutherford (FL-04)
  • Rep. Karen Handel (GA-06)
  • Ranking Member John Conyers, Jr. (MI-13)
  • Rep. Jerry Nadler (NY-10)
  • Rep. Zoe Lofgren (CA-19)
  • Rep. Sheila Jackson Lee (TX-18)
  • Rep. Steve Cohen (TN-09)
  • Rep. Hank Johnson, Jr. (GA-04)
  • Rep. Ted Deutch (FL-22)
  • Rep. Luis Gutierrez (IL-04)
  • Rep. Karen Bass (CA-37)
  • Rep. Cedric Richmond (LA-02)
  • Rep. Hakeem Jeffries (NY-08)
  • Rep. David Cicilline (RI-01)
  • Rep. Eric Swalwell (CA-15)
  • Rep. Ted Lieu (CA-33)
  • Rep. Jamie Raskin (MD-08)
  • Rep. Pramila Jayapal (WA-07)
  • Rep. Brad Schneider (IL-10)

For more information:

 

 

We Disability Rights Activists Knew the GOP Wanted Us Dead Already

Yesterday, the House passed their bullshit health bill.
This bill targets special education, turns sexual assault and C-sections into pre-existing conditions, and affects even those on employer-based plans. It affects the LGBT+ community even more. They’ve even had the audacity to exclude themselves. The only potential upside is that at least the Senate won’t be voting on this specific bill.
Still, it’s what we disability rights activists have been saying for a long time – that eugenics-related bills have been passed to harm us for eons. The Nazis practiced and ‘perfected’ their Holocaust shit on us. In the 90’s – yes, the 1990’s – we had to harm ourselves in public by crawling on Washington to get any protections.
This is another in a long line. And another in a long line that could’ve been avoided had people been listening to us to begin with… but that’s another story.
As someone who has a whole shit ton to lose from this bill, I’m pissed. But I’m fired up and ready to go. I hope you are, too, cause it’s gonna take all of us to fight this.
Here’s how:
Talk about shit on social media. Use hashtags like #healthhasnoparty #iamapreexistingcondition or #ifidiefrommypreexistingcondition. Tag your representatives, local news outlets, and major news outlets.
Make videos.
Write letters to the editor. Get on the news.
Contact your Senators. Do it today. Do it tomorrow and every single day, right up to the vote.
Remember that you can text RESIST to 50409 to utilize Resist Bot, which will compile your thoughts into a fax. This is far more likely to be read than email – and easier for many of us than calling.
After you contact each day, take some time to lick your wounds. We all have them right now – and we all need to take care of ourselves.

 

Political Rantings Regarding Refugees

Before I started NSSD, I used to write a more general blog. Since I was working on my undergraduate degree in religious studies, history, and politics at the time, I wrote a lot about the intersection of those areas.

I try really hard to not get into those subjects here, because I know how separating they can be. Trust me – it’s a part of why I have no relationship with my mother.

The recent attacks in Paris, France, have brought up xenophobia, racism, and religious discrimination across the entire world… but nowhere more than in the United States oddly enough.

France is actually increasing how many refugees it brings in. On the flip side, the US is trying to BAN refugees from Syria. Even those whose parents were essentially refugees like Rubio & Cruz are trying to say we don’t need to help these people.

It’s not enough to ignore the plight of the Syrian people – we have to actively not help them?

Mind you, this is happening as we start the holiday, feel-good, love-and-help-one-another season.

I know that as someone who isn’t religious, it is easier for me to see the hypocrisy. Let’s break this down a bit though…

We live in a country that:

  1. has a folkloric history of peoples emigrating here due to ‘persecution’ especially of the religious kind;
  2. is cited (incorrectly but that’s for another time) as being founded as a Christian nation;
  3. has a poem about inviting others less fortunate here for a better life from Emma Lazarus:

 

Give me your tired, your poor,
Your huddled masses yearning to breathe free,
The wretched refuse of your teeming shore.
Send these, the homeless, tempest-tossed, to me:
I lift my lamp beside the golden door.

The United States, the melting pot of the world, the savior to many, isn’t living up to our end of the bargain. And yet, we find the time to argue over how Starbucks having a non-holiday endorsing red cup is a war on Christmas and Christianity?

Dear GOP et al – YOU are running the war against your own religion.

So many of you live in the 1% that holds so much wealth.

So many of you run the corporations that employ workers in horrible situations overseas while complaining about job creation here.

So many of you turn people away from your religion by your proselytizing while forgetting to practice what you preach.

You want to be scared of Muslims? They’re afraid of the Daesh more than you are, because your lives aren’t directly threatened by Daesh (who, by the way, we helped create just FYI).

If you don’t want to help, you should probably turn over your iPhone, made proudly by the son of a Syrian immigrant. Maybe that’ll motivate you?

By all means, though, let’s not help people who are being systematically murdered and actually need our help…

After all, we have more overpriced crap made by sweatshop factory workers we exploit in other countries to sell for the over-commercialized holiday that is supposed to remind us to love and help each other.