(Don’t) Help Raise Money for the Fibromyalgia Center of Excellence

As of Memorial Day weekend 2018, they put up a photo appropriating indigenous US culture while discussing being a fibro warrior. I’m waiting to see how this pans out and will update further. Unfortunately, they’ve chosen to ignore feedback unless they receive it privately. This is not being accountable in the least. Because of this shitty reaction, they’ll stay on the blacklist I maintain at Chronic Sex.

How many times have you been in pain from fibromyalgia and no one believes you? Don’t you wish there was somewhere you could go to get better care? Or somewhere to refer your providers to for continuing education?

There is! The Fibromyalgia Care Society of America (FCSA), founding in 2015, focuses on pushing fibro healthcare into the 21st century. It’s a good thing, too, because we need more medical providers who ‘get it’ when it comes to fibro. Founder Mildred Velez is a fellow patient and has been since 2007.

FCSA wants to create the Center of Excellence where they will work with leading medical colleges and teaching hospitals throughout the country to offer elite multidisciplinary care. Once the first one is up and running, they hope to create more throughout the country. That means better care for all of us.

To get closer to their goal, FCSA is hosting a fundraising event – an awareness walk – throughout the month of May. You can partake online throughout the entire month! There are also a few live Caterpillar walks – May 5th in NYC, May 12th in Orlando, and May 19th in Newark.

Let’s all chip in what we can to help push fibro care to more acceptable levels, increase fibro research, and help each other!