Nortriptyline & Health Update

I’ve been on nortriptyline for a while now, but it’s been a minute since I last updated everyone.

At my most recent neurology appointment, we added magnesium and B2 to my meds. Both pills are huge, so that’s been a fun change.

The yellow pill above is the B2 and the black is the magnesium.

The good news is the combination of 20 mg of nortriptyline and the vitamins has incredibly decreased the number of migraines I’ve had. I’ve even been able to go to areas with bright flashing lights and been okay for a while.

Unfortunately, it hasn’t actually helped my neuroWTF at all. I’ve had that nearly every single day for two weeks now.

A few weeks ago, though, I got a couple of allergy tests I needed. At the appointment, I also brought up Mast Cell Activation Syndrome (MCAS). As I went through many of my symptoms, the doctor – familiar with MCAS – thought there was certainly a chance it might explain my symptoms. Two of the urine-based tests are still going through testing, so I’ll hopefully know more by the end of the week. The tricky thing is that I may have this without the urine showing it. The good news is that we can still treat it as a likely diagnosis and see if upping my Zyrtec helps.

While I write this, I’m laying down because of these funky symptoms. They’ve gotten worse lately. Right now I’m numb (lack of sensation with some pins and needles) from the back of my head to my thighs. It’s an interesting thing to go through… and scary. It’s been a year now of pushing to see what this might be, and I’m nervous about how much longer it’ll take to find the right answer – and a potential treatment for this.