So one of the things that get neglected a lot when it comes to RA is how those around the person afflicted handle things. It often skips the minds of those afflicted even, as we tend to get wrapped up in our own little worlds.
Analysing the transcripts of in-depth interviews, researchers reported that all partners of RA patients reported common issues, grouped into the following areas:
Emotions: Partners commonly expressed feelings of immense sadness for a perceived loss of the future, sadness for their experiences of their spouse, but also for themselves.
Adaptation: Several of the partners interviewed hoped for a “cure” for RA with one saying “medicine can do anything nowadays, yes it’s a problem but they’ll give her a tablet and it will go away.” Over time however, the interviews showed that partners came to terms with the permanency of the condition.
Coping Strategies: Some partners reported experiencing feelings of denial, helplessness, and concealment of both the condition and its impact on their relationship.
Support and Information: Whilst all partners interviewed were reluctant to attend patient support groups, they acknowledged their importance, with one participant stating “I think it would be really helpful to people who are newly diagnosed but I would have to have my arm twisted to go there”.